Key References

Considerations for Patient and Student Engagement

These were shared at the International Congress on Academic Medicine (ICAM) 2023, as part of the panel on student, patient, and system engagement by CACHE and The Institute for Education Research (TIER), UHN.

While informed by CACHE and TIER’s experiential knowledge from patient and student engagement work, voices in our healthcare and education systems, and research literature, we recognize that every context is different. We are working within a North American context from a team based in Toronto, Canada. We welcome insights from patients, students, educators, clinicians, faculty, staff, and leaders from other contexts (Farah.Friesen@uhn.ca).

  1. Consider how to continually strive to engage patients and students from diverse backgrounds, “to represent the complex cultural, social, and economic complexions of contemporary society” (Rowland & Kumagai 2018). Scholarship in patient engagement has cautioned that usually individuals who are who are white, affluent, and older have time to take part in initiatives (Rowland & Kumagai 2018). In patient and student engagement, we must be aware so that the concerns and priorities of select demographic groups (often privileged) are not taken to reflect the needs of all.
  2. While striving for representation, consider how to include patients/clients/families/caregivers in meaningful, non-tokenistic ways. Guiding principles are a useful approach before patient or student engagement to ensure collaborative achievement of shared visions. In patient engagement, personal knowledge and lived experience are often invited; valuing this as expertise might also include considerations for patient recognition through remuneration.
  3. Ensure that diverse perspectives and experiences are invited and valued. This might necessitate brave/accountable spaces (Ahenkorah 2020) where power relations are explicitly addressed in order to disrupt hierarchies and share power (www.teachingfortransformation.com) - e.g. between patient/clinician or teacher/learner. Offering space where diverse views exist, without consensus, provides opportunities for dialogue, critical reflection (Kumagai & Naidu 2015; hooks 1994; Ng et al 2015; Ng et al 2019; Boyd et al 2022), and collaborative leadership.
  4. Maintain curiosity and listen with openness. Sometimes educators might assume that students are “not ready,” do not like uncertainty, and want “recipes” - yet we are striving to prepare learners for the realities of “indeterminate zones of practice - uncertain, unstable, unique, or value-conflicted practice situations” (Ng et al. 2015). Our work with student-led environments, Interprofessional Healthcare Students' Association (IPHSA), and the University of Toronto’s IPE Curriculum electives show that often students are craving new and different learning experiences while faculty might resist. Mentorship and support for students in combination with faculty development for educators ensures mutually beneficial, continual growth for all.
  5. Offer professional development opportunities to patients and students (e.g. support conference registration fees, invite to Community of Practice and other events). This recognizes patients and students as equally valued members of practice and education communities and integral collaborators in knowledge mobilization.

Select References on Patient & Student Engagement Considerations

  • Ahenkorah E. Safe and Brave Spaces Don’t Work (and What You Can Do Instead). Medium. 2020. Full text
  • Baker LR, Phelan S, Woods NN, Boyd VA, Rowland P, Ng SL. Re-envisioning paradigms of education: towards awareness, alignment, and pluralism. Advances in Health Sciences Education. 2021 Aug;26:1045-58. Full text.
  • Brewer ML, Flavell HL, Trede F, Smith M. A scoping review to understand “leadership” in interprofessional education and practice. Journal of Interprofessional Care. 2016 Jul 3;30(4):408-15. Full text.
  • Boyd VA, Woods NN, Kumagai AK, Kawamura AA, Orsino A, Ng SL. Examining the impact of dialogic learning on critically reflective practice. Academic Medicine. 2022 Nov 1;97(11S):S71-9. Full text.
  • Chicago Beyond. Why am I always being researched? Research equity guidebook. https://chicagobeyond.org/researchequity/
  • Health Quality Ontario. Engaging with Patients and Caregivers about Quality Improvement: A Guide for Health Care Providers. Full text.
  • Jensen CB, Norbye B, Dahlgren MA, Iversen A. Patient participation in interprofessional learning and collaboration with undergraduate health professional students in clinical placements: A scoping review. Journal of Interprofessional Education & Practice. 2022 Jan 12:100494.
  • Kumagai AK, Naidu T. Reflection, dialogue, and the possibilities of space. Academic Medicine. 2015 Mar 1;90(3):283-8. Full text.
  • Kumagai AK, Naidu T. On time and tea bags: chronos, kairos, and teaching for humanistic practice. Academic Medicine. 2020 Apr 1;95(4):512-7. Full text.
  • Lumague M, Morgan A, Mak D, Hanna M, Kwong J, Cameron C, Zener D, Sinclair L. Interprofessional education: the student perspective. Journal of interprofessional care. 2006 Jan 1;20(3):246-53. Full text.
  • Ng SL, Forsey J, Boyd VA, Friesen F, Langlois S, Ladonna K, Mylopoulos M, Steenhof N. Combining adaptive expertise and (critically) reflective practice to support the development of knowledge, skill, and society. Advances in Health Sciences Education. 2022 Nov 9:1-7. Full text
  • Ng SL, Kinsella EA, Friesen F, Hodges B. Reclaiming a theoretical orientation to reflection in medical education research: a critical narrative review. Medical education. 2015 May;49(5):461-75. Full text.
  • Ng SL, Wright SR, Kuper A. The divergence and convergence of critical reflection and critical reflexivity: implications for health professions education. Academic Medicine. 2019 Aug 1;94(8):1122-8. Full text.
  • Richards DP, Poirier S, Mohabir V, Proulx L, Robins S, Smith J. Reflections on Patient Engagement by Patient Partners: How It Can Go Wrong. Pre-print undergoing review full text.
  • Rowland P, Anderson M, Kumagai AK, McMillan S, Sandhu VK, Langlois S. Patient involvement in health professionals’ education: A meta-narrative review. Advances in Health Sciences Education. 2019 Aug 1;24:595-617. Full text.
  • Rowland P, Kumagai AK. Dilemmas of representation: patient engagement in health professions education. Academic Medicine. 2018 Jun 1;93(6):869-73. Full text
  • Wong R, Kitto S, Kumagai AK, Whitehead CR. Paradox of patient-centered care and the implications for patient involvement in continuing professional development. Journal of Continuing Education in the Health Professions. 2021 Oct 1;41(4):238-46. Full text.

Key References for Collaboration Healthcare & Education